Mineka Furtch and son.Photo: Shomari Furtch

Mineka Furtch says her previous doctor initially downplayed her symptoms of nausea and vomiting when she was pregnant in 2020. She was eventually diagnosed with hyperemesis gravidarum, and the severe symptoms associated with the condition have returned now that she is pregnant again.

But when the 29-year-old from suburban Atlanta was five weeks pregnant in 2020, she started throwing up and couldn’t stop. Some days she kept down an orange; other days, nothing. Furtch used up her paid time off at work with sick days, eventually having to rely on unpaid medical leave. She remembered her doctor telling her it was just morning sickness and things would get better.

By the time Furtch was 13 weeks pregnant, she had lost more than 20 lbs.

Now, Furtch’s son is 18 months old, and she is suffering again from severe nausea and vomiting well into the second trimester of a new, unplanned pregnancy.

Mineka Furtch and son.Shomari Furtch

Mineka Furtch says her previous doctor initially downplayed her symptoms of nausea and vomiting when she was pregnant in 2020. She was eventually diagnosed with hyperemesis gravidarum, and the severe symptoms associated with the condition have returned now that she is pregnant again.

Mothers have said they went without care for fear that medicine would hurt their fetus, because they couldn’t afford it, or because their doctor didn’t take them seriously. Left alone, symptoms get more difficult to control, and such delays can become medical emergencies. Extreme cases are calledhyperemesis gravidarumand may last throughout a pregnancy, even with treatment.

“For most women, it’s not until they end up in the ER and go, ‘Well, most of my friends haven’t been to an ER,’ they realize this isn’t normal,” said Kimber MacGibbon, executive director of the Her Foundation, which researches and raises awareness of hyperemesis gravidarum.

There area lot of unknownsaround the cause of nausea and vomiting in pregnancy.Research has indicatedgenetics playsa rolein its severity, and hyperemesis is estimated to occur in up to 3% of pregnancies. But there’s no clear line differentiatingmorning sickness from hyperemesisor consistent criteriato diagnose the condition, which MacGibbon said results in underestimating its impact.

Wide-ranging estimates suggestat least 60,000 people—possibly 300,000 or more— go to a hospital in the U.S. each year with pregnancy-related dehydration or malnourishment. An untold number go to walk-in clinics or don’t seek medical care.

The effects ripple intoevery aspect of a person’s lifeand the economy.One study estimatedthe total annual economic burden of severe morning sickness and hyperemesis in the U.S. in 2012 amounted to more than $1.7 billion in lost work, caregiver time, and the cost of treatment.

It didn’t stop the vomiting. Nearly a month after my symptoms began, all I could keep down was brown rice. My husband and I had hoped for this pregnancy, but at that point, part of me thought a miscarriage would at least end the retching.

The next week, a remote on-call doctor prescribed anti-nausea medication after I went 24 hours without food. Now, well into my second trimester, the nausea remains but my symptoms are manageable and continue to improve.

RELATED VIDEO: Princess Kate Has Hyperemesis Gravidarum

For this story, I spoke with women who went weeks without being able to keep solids down and could no longer take in water before they received IVs for hydration. For many, it can be difficult to know when to seek medical attention.

Gandhi said, in her experience, a small segment of patients experience severe symptoms, which for the majority peak around the eighth or 10th week of pregnancy. She said it’s standard for doctors to ask during a first prenatal visit whether a patient has felt nauseated, and patients should call if issues arise before then. Treatment is gradual — changing the diet or taking a natural supplement like vitamin B6 — before considering an anti-nausea prescription medication.

Mom of 3 Who Suffered Same Morning Sickness as Princess Kate Shares Her Survival Tips: ‘It’s Miserable’

First prenatal visits vary but can happen as late as10 to 12 weeksinto the pregnancy, once it’s possible to confirm the fetus’s heartbeat. JaNeen Cross, a perinatal social worker and assistant professor at Howard University in Washington, D.C., said that leaves a gap in care for women early in pregnancy.

“That’s a lot of time for nausea, sickness, bleeding to go on as they think ‘Is this normal?'” Cross said. “And we’re assuming people have access to providers.”

Barriers to care include whether someone has insurance or can afford their copays, or if they have child care and paid time off work to go to the doctor.

Cross said she’d like to see more services and resources built into communities, so that as soon as someone finds out they’re pregnant, they’re linked to support groups, community health workers, or programs that make home visits. That could help with another hurdle for care: trust that treatment is safe.

Some of that mistrust may be rooted in the 1950s and ’60s, when the morning sickness drug thalidomide led to thousands of babies beingborn with severe birth defects.Research has foundtoday’s anti-nausea medications used in pregnancy pose little if any risk to the fetus.

By her sixth week of pregnancy with her first child, Helena Schwartz, 33, of Brooklyn, New York, was on at-home IVs because she couldn’t keep food down. That helped for about two days; then her body began rejecting food again. Schwartz said her doctor, who had been quick to help her, prescribed anti-nausea medication. She left the medicine untouched for three weeks as her symptoms got worse.

Even with a diagnosis and supportive medical team, people like Schwartz have experienced extreme symptoms throughout their pregnancies, and healing is slow.

As for Furtch, the prescription medication she used in her first pregnancy didn’t do enough this time around to ease her symptoms.

Her new obstetrician takes her symptoms seriously, but at times she has still faced roadblocks to care. At first, she couldn’t afford thousands of dollars out-of-pocket for a medical device that would constantly pump anti-nausea medication through her system. When her doctor prescribed a series of drugs as a backup plan, her insurance initially refused to cover the cost. She went days without medicine, which meant throwing up about eight times a day.

Since she started the prescription medicines, she typically can keep some food down. But she still has her bad days, and had to go to the hospital again in late December to get IVs.

“Giving birth is nothing compared to 10 months of hell,” Furtch said.

KHN(Kaiser Health News)is a national newsroom that produces in-depth journalism about health issues. Together with Policy Analysis and Polling, KHN is one of the three major operating programs atKFF(Kaiser Family Foundation). KFF is an endowed nonprofit organization providing information on health issues to the nation.

source: people.com